Disability advocacy messaging and conceptual links to underlying disability identity development among college students with learning disabilities and attention disorders

Disabil Health J. 2020 Jan;13(1):100827. doi: 10.1016/j.dhjo.2019.100827. Epub 2019 Aug 7.

Abstract

Background: Learning disabilities and attention disorders (LD/AD) are highly prevalent neurodevelopmental conditions that influence developmental trajectories and whose impacts exist throughout the life course. Self-advocacy skills are critical for college students with LD/AD, which are underpinned by understanding of self and one's disability.

Objective: This study examined disability advocacy messaging included in projects created by college students with LD/AD, compared patterns in disability messaging to existing disability identity models, and explored changes in disability messaging during receipt of holistic campus-based LD/AD supports.

Methods: Participants were 52 undergraduates with LD/AD enrolled in a larger study. This one-group analysis involved qualitative exploration of the projects' topical content, use of grounded theory procedures for conceptualizing the data, and quantitative analysis to explore changes over time in disability advocacy messaging.

Results: Participants messaged a broad range of disability-related topics. A five-level theoretical model of disability messaging was created from the textual data. The model evinces parallels to existing disability identity development models. A significant (p < .01) positive shift in disability messaging was observed in a comparison of messages from participants' first and last projects submitted over the four-semester period of study involvement.

Conclusion: Study findings support conceptual linkages among disability messaging and disability identity development. The resultant continuum model suggests a potential extension of existing disability identity development paradigms. Shifts in disability messaging provide preliminary evidence for potential personal and institutional benefits of engaging college students with LD/AD in disability-focused project creation.

Keywords: Attention deficit hyperactivity disorder; Learning disorders; Mixed-methods; Psychosocial development; Self concept.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, U.S. Gov't, Non-P.H.S.

MeSH terms

  • Adolescent
  • Adult
  • Attention Deficit Disorder with Hyperactivity*
  • Cognition Disorders
  • Communication*
  • Disabled Persons* / psychology
  • Female
  • Help-Seeking Behavior*
  • Humans
  • Learning Disabilities*
  • Male
  • Prevalence
  • Self Concept*
  • Social Identification
  • Social Work
  • Students* / psychology
  • Young Adult