Same behaviours, different reasons: what do patients with co-occurring anorexia and autism want from treatment?

Int Rev Psychiatry. 2019 Jun;31(4):308-317. doi: 10.1080/09540261.2018.1531831. Epub 2019 Mar 1.

Abstract

Research suggests that up to one in four individuals with anorexia nervosa (AN) may be on the autistic spectrum, and that these autistic traits may not have been recognized or diagnosed prior to eating disorder (ED) treatment. Significantly, these heightened autistic traits are associated with poorer treatment outcomes, suggesting that treatment may need to be adapted for this population. The purpose of this study was to explore with people with AN on the autistic spectrum their experiences of ED treatment, and their views on what needs to be changed. Women with AN (n= 13), either with an autism diagnosis or presenting with clinically significant levels of autistic traits, were interviewed on their experiences of treatment and potential improvements. Interviews were analysed using thematic analysis. The findings suggest that this population experience unique needs associated with their autism that are not being met by standard ED treatments, and recommendations are made for potential future adaptations. Future research into a more systematic approach for treatment adaptations for this population, including education programmes for clinicians, could potentially lead to better treatment experiences.

Keywords: Qualitative; anorexia; autism; comorbidity; treatment.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Anorexia Nervosa / epidemiology
  • Anorexia Nervosa / therapy*
  • Autism Spectrum Disorder / epidemiology
  • Autism Spectrum Disorder / physiopathology*
  • Comorbidity
  • Female
  • Health Services Accessibility*
  • Humans
  • Patient Preference*
  • Qualitative Research
  • Young Adult