Use of an Item Bank to Develop Two Short-Form FAMCARE Scales to Measure Family Satisfaction With Care in the Setting of Serious Illness

J Pain Symptom Manage. 2015 May;49(5):894-903.e1-4. doi: 10.1016/j.jpainsymman.2014.10.017. Epub 2014 Dec 27.

Abstract

Context: Family satisfaction is an important and commonly used research measure. Yet current measures of family satisfaction are lengthy and may be unnecessarily burdensome--particularly in the setting of serious illness.

Objectives: To use an item bank to develop short forms of the Family Satisfaction with End-of-Life Care (FAMCARE) scale, which measures family satisfaction with care.

Methods: To shorten the existing 20-item FAMCARE measure, item response theory parameters from an item bank were used to select the most informative items. The psychometric properties of the new short-form scales were examined. The item bank was based on data from family members from an ethnically diverse sample of 1983 patients with advanced cancer.

Results: Evidence for the new short-form scales supported essential unidimensionality. Reliability estimates from several methods were relatively high, ranging from 0.84 for the five-item scale to 0.94 for the 10-item scale across different age, gender, education, ethnic, and relationship groups.

Conclusion: The FAMCARE-10 and FAMCARE-5 short-form scales evidenced high reliability across sociodemographic subgroups and are potentially less burdensome and time-consuming scales for monitoring family satisfaction among seriously ill patients.

Keywords: Family satisfaction; item banks; item response theory; short-form FAMCARE.

Publication types

  • Multicenter Study
  • Research Support, N.I.H., Extramural

MeSH terms

  • Caregivers
  • Consumer Behavior / statistics & numerical data*
  • Critical Illness / epidemiology
  • Critical Illness / psychology
  • Critical Illness / therapy
  • Databases, Factual*
  • Family / psychology*
  • Female
  • Humans
  • Male
  • Middle Aged
  • Neoplasms / psychology*
  • Neoplasms / therapy*
  • Palliative Care / psychology
  • Palliative Care / statistics & numerical data
  • Patient Satisfaction / statistics & numerical data
  • Prevalence
  • Reproducibility of Results
  • Sensitivity and Specificity
  • Surveys and Questionnaires
  • Terminal Care / psychology
  • Terminal Care / statistics & numerical data*
  • United States / epidemiology