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J Pediatr Nurs. 2014 Jun 26. pii: S0882-5963(14)00192-4. doi: 10.1016/j.pedn.2014.06.009. [Epub ahead of print]

When a Child Dies: Parents' Experiences of Palliative Care-An Integrative Literature Review.

Author information

  • 1Department of Nursing Sciences, Mid Sweden University, Studiegången 1, Östersund, Sweden. Electronic address: titti.melin-johansson@miun.se.
  • 2Department of Nursing Sciences, Mid Sweden University, Studiegången 1, Östersund, Sweden; Child and Adolescent Medicine, Östersund hospital, Kyrkgatan 16, Östersund, Sweden.
  • 3Child and Adolescent Medicine, Östersund hospital, Kyrkgatan 16, Östersund, Sweden.

Abstract

The aim of this integrative review was to increase knowledge about parents' experiences of palliative care when their child is dying or has died due to illness using Whittemore and Knafl (2005) analysis process. Computerized databases were used to search the literature. Nine papers met the inclusion criteria. The analysis resulted in five categories: genuine communication, sincere relationships, respect as an expert, and alleviation of suffering and need of support, including 15 subcategories. Health professionals need education to provide high-quality pediatric palliative care. They especially need training concerning existential issues, and further studies need to be performed.

Copyright © 2014 Elsevier Inc. All rights reserved.

KEYWORDS:

Communication; Family; Literature review; Palliative care; Pediatrics; Support

PMID:
25038375
[PubMed - as supplied by publisher]
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