Send to:

Choose Destination
See comment in PubMed Commons below
Annu Rev Public Health. 2014;35:123-38. doi: 10.1146/annurev-publhealth-032013-182423. Epub 2013 Dec 18.

Implementing health reform: improved data collection and the monitoring of health disparities.

Author information

  • 1Office of Minority Health, U.S. Department of Health and Human Services, Rockville, Maryland 20852; email:


The relative lack of standards for collecting data on population subgroups has not only limited our understanding of health disparities, but also impaired our ability to develop policies to eliminate them. This article provides background about past challenges to collecting data by race/ethnicity, primary language, sex, and disability status. It then discusses how passage of the Affordable Care Act has provided new opportunities to improve data-collection standards for the demographic variables of interest and, as such, a better understanding of the characteristics of populations served by the U.S. Department of Health and Human Services (HHS). The new standards have been formally adopted by the Secretary of HHS for application in all HHS-sponsored population health surveys involving self-reporting. The new data-collection standards will not only promote the uniform collection and utilization of demographic data, but also help the country shape future programs and policies to advance public health and to reduce disparities.

[PubMed - indexed for MEDLINE]
PubMed Commons home

PubMed Commons

How to join PubMed Commons

    Supplemental Content

    Full text links

    Icon for Atypon
    Loading ...
    Write to the Help Desk