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Br J Dermatol. 2013 Sep;169(3):629-36. doi: 10.1111/bjd.12414.

A service evaluation of the Eczema Education Programme: an analysis of child, parent and service impact outcomes.

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  • 1Faculty of Health and Social Care, University of Hull, Dearne Building, Hull, HU6 7RX, U.K.

Abstract

BACKGROUND:

The systematic support of parents of children with eczema is essential in effective disease management. The few existing support models have a limited evidence base. This paper reports the outcome-orientated service evaluation of an original, extensive, social learning-theory based, nurse-led Eczema Education Programme (EEP).

OBJECTIVES:

To evaluate the EEP using specified child and parental outcomes and service impact data.

METHODS:

From a sample of 257 parent-child dyads attending the EEP, a pretest-post-test design evaluated its child impact using health-related quality of life measures (Infants' Dermatitis Quality of Life index, which includes a small dermatitis severity element, and Children's Dermatology Life Quality Index), severity measures (Patient Orientated Eczema Measure), a new parental measure (Parental Self-Efficacy in Eczema Care Index) and service impact data based on general practitioner (GP) attendance patterns pre- and postintervention.

RESULTS:

Statistically significant impacts were observed on infant quality of life (P < 0·001), child quality of life (P = 0·027), disease severity (P < 0·001) and parental self-efficacy (P < 0·001). Improvements in child quality of life, parental efficacy and service impact were also evident from qualitative data. The cumulative total of all GP visits for selected participants post-EEP reduced by 62%.

CONCLUSIONS:

The EEP appears to be an effective model of delivering structured education to parents of children with eczema, and one generalizable to other multiethnic metropolitan populations. As a noncontrolled study, this rigorous service evaluation highlights the model's significance and the case for an evaluative multicentre randomized controlled trial of this educational intervention to inform a nurse-led programme of care.

© 2013 British Association of Dermatologists.

PMID:
23646904
[PubMed - indexed for MEDLINE]
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