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Children and Youth with Special Healthcare Needs in Healthy People 2020: A Consumer Perspective.


Genetic Alliance; Family Voices.


Washington (DC): Genetic Alliance; 2013 Feb.
Genetic Alliance Monographs and Guides.


This document examines Healthy People 2020 objectives and serves as a companion to Envision 2020, the 10-year strategic plan for the Division of Services for Children with Special Health Needs in the Health Resources and Services Administration’s Maternal and Child Health Bureau (MCHB). Genetic Alliance and Family Voices collaborated with MCHB to create this family and consumer perspective on the national health promotion agenda and how it relates to CYSHCN and their families. Children and youth with special healthcare needs (CYSHCN) deserve effective, efficient services and support. A passionate and powerful community has emerged over the last century to help make that goal a reality. However, though many excellent services exist, the network of programs that deliver them is complicated, often lacking both coordination and baseline data against which to measure their success.

Copyright © 2013, Genetic Alliance.

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