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Contemp Clin Trials. 2012 Jan;33(1):5-11. doi: 10.1016/j.cct.2011.10.004. Epub 2011 Oct 24.

Informed consent process for patient participation in rare disease registries linked to biorepositories.

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  • 1Office of Rare Diseases Research, National Institutes of Health, Bethesda, MD 20892, United States. rubinsty@mail.nih.gov
PMID:
22036955
[PubMed - indexed for MEDLINE]
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