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Am J Public Health. 2011 Dec;101(12):2235-8. doi: 10.2105/AJPH.2011.300247. Epub 2011 Oct 20.

Community participatory research with deaf sign language users to identify health inequities.

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  • 1Department of Family Medicine, Rochester Prevention Research Center/National Center for Deaf Health Research, University of Rochester Medical Center, Rochester, NY 14642, USA.


Deaf people who use American Sign Language (ASL) are medically underserved and often excluded from health research and surveillance. We used a community participatory approach to develop and administer an ASL-accessible health survey. We identified deaf community strengths (e.g., a low prevalence of current smokers) and 3 glaring health inequities: obesity, partner violence, and suicide. This collaborative work represents the first time a deaf community has used its own data to identify health priorities.

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