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Intellect Dev Disabil. 2011 Oct;49(5):327-40. doi: 10.1352/1934-9556-49.5.327.

"I'm supposed to be in charge": self-advocates' perspectives on their self-determination support needs.

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  • 1Bureau of Autism Services, Pennsylvania Department of Public Welfare, USA.

Abstract

In this qualitative interview study, we explored the perceptions of adults with intellectual disability regarding interpersonal or social supports needed to express their own self-determination. Specifically, 10 adults, all members of a self-advocacy group, were asked to discuss their understanding of the term self-determination and ways in which support staff have either supported or inhibited their self-determination. Ten themes characterizing supportive and impeding staff actions were identified. The need for greater exploration of environmental and social influences on self-determination is emphasized.

[PubMed - indexed for MEDLINE]
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