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Intellect Dev Disabil. 2011 Oct;49(5):315-26. doi: 10.1352/1934-9556-49.5.315.

Disability identity of leaders in the self-advocacy movement.

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  • 1University of Illinois at Chicago, Disability and Human Development, 1640 W. Roosevelt Rd., Chicago, IL 60608, USA. jcaldw3@uic.edu


Life stories and perspectives of leaders in the self-advocacy movement were explored to enhance knowledge about disability identity formation. In-depth qualitative interviews were conducted with 13 leaders in the self-advocacy movement. Five major themes emerged: (a) resistance--claiming personhood and voice; (b) connection with disability community; (c) reclaiming disability and personal transformation; (d) interconnection with broader disability rights movement; and (e) bond with social justice and interdependency.

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