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Health Policy. 2011 Oct;102(2-3):105-16. doi: 10.1016/j.healthpol.2011.05.002.

Public involvement in the systematic review process in health and social care: a narrative review of case examples.

Author information

  • 1NIHR Research Design Service for Yorkshire and the Humber, United Kingdom. j.boote@sheffield.ac.uk

Abstract

OBJECTIVES:

To review the evidence on public involvement in the systematic review process in health and social care; to examine the different methods, levels and stages of involving the public; to synthesise the contributions of the public, as well as the identified tensions, facilitating strategies and recommendations for good practice.

METHOD:

Systematic literature search and narrative review.

FINDINGS:

Seven case examples were found covering the following review topics: patients' perspectives on electro-convulsive therapy; user involvement in nursing, midwifery and health visiting research; treatments for degenerative ataxias; teaching, learning and assessment of law in social work education; HIV health promotion for men who have sex with men; the conceptualisation, measurement, impact and outcomes of public involvement in health research; methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. The public was found to contribute to systematic reviews by: refining the scope of the review; suggesting and locating relevant literature; appraising the literature; interpreting the review findings; writing up the review. Numerous tensions, facilitating strategies and recommendations were identified.

CONCLUSIONS:

The issues raised in this paper should assist researchers in developing and conducting systematic reviews with the involvement of the public.

Copyright © 2011 Elsevier Ireland Ltd. All rights reserved.

[PubMed - indexed for MEDLINE]
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