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Trends Genet. 2010 May;26(5):199-201. doi: 10.1016/j.tig.2009.12.007. Epub 2010 Apr 8.

Personal genome research : what should the participant be told?

Author information

  • 1Center for Medical Ethics and Health Policy, Baylor College of Medicine, One Baylor Plaza, BCM420 Houston, Texas 77030, USA. amcguire@bcm.edu

Abstract

Should the results of whole genome sequencing research be disclosed to participants, in particular when the results have uncertain or indeterminate phenotypic consequences? This controversial question is considered in light of one author's (J.L.) experience as a geneticist who recently had his own genome sequenced.

Copyright 2010 Elsevier Ltd. All rights reserved.

PMID:
20381895
[PubMed - indexed for MEDLINE]
PMCID:
PMC2868334
Free PMC Article
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