Display Settings:

Format

Send to:

Choose Destination
See comment in PubMed Commons below
Qual Life Res. 2009 Sep;18(7):793-800. doi: 10.1007/s11136-009-9497-8. Epub 2009 Jun 21.

PatientViewpoint: a website for patient-reported outcomes assessment.

Author information

  • 1Johns Hopkins School of Medicine, Baltimore, MD 21205, USA. csnyder@jhsph.edu

Abstract

PURPOSE:

To develop a prototype website to collect patient-reported outcomes in outpatient clinical oncology and link the data with the electronic medical record (EMR).

METHODS:

A multidisciplinary Research Network, including experts in outcomes research, clinical oncology, nursing, social work, information technology, EMRs, behavioral science, decision science, clinical trials, law, and a cancer survivor, was formed to design the prototype website. The Research Network developed the initial website specifications, elicited feedback from patients (n = 20) and clinicians (n = 7), constructed the website, and conducted usability testing (n = 10).

RESULTS:

Clinicians reported that the website could improve clinical practice if it was not burdensome and were most interested in tracking change over time. Patients were interested in using the website because of the potential to facilitate communication with their clinicians. Patients emphasized the importance of short and simple surveys and a user-friendly interface. The PatientView-oint website was designed to meet these specifications. Usability testing suggested that patients had few problems accessing and using the site.

CONCLUSIONS:

Preliminary reports from clinicians and patients suggest that a website to collect PROs and link them with the EMR could help improve the quality of cancer care. Further pilot-testing will evaluate the use, usefulness, and acceptability of PatientViewpoint.

PMID:
19544089
[PubMed - indexed for MEDLINE]
PMCID:
PMC3073983
Free PMC Article

Images from this publication.See all images (1)Free text

FIGURE 1
PubMed Commons home

PubMed Commons

0 comments
How to join PubMed Commons

    Supplemental Content

    Full text links

    Icon for Springer Icon for PubMed Central
    Loading ...
    Write to the Help Desk