Format

Send to:

Choose Destination
See comment in PubMed Commons below
BMC Pediatr. 2009 Jan 22;9:6. doi: 10.1186/1471-2431-9-6.

Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: a systematic review.

Author information

  • 1University Children's Hospital Zurich, Department of Psychosomatics and Psychiatry, Steinwiesstrasse 75, Zurich, Switzerland. bea.latal@kispi.uzh.ch

Abstract

BACKGROUND:

Children with congenital heart defects (CHD) requiring open-heart surgery are a group at high risk for health-related sequelae. Little consensus exists regarding their long-term psychological adjustment (PA) and health-related quality of life (QoL). Thus, we conducted a systematic review to determine the current knowledge on long-term outcome in this population.

METHODS:

We included randomized controlled trials, case control, or cohort studies published between 1990-2008 evaluating self- and proxy-reported PA and QoL in patients aged between two and 17 years with a follow-up of at least two years after open heart surgery for CHD.

RESULTS:

Twenty-three studies assessing psychological parameters and 12 studies assessing QoL were included. Methodological quality of the studies varied greatly with most studies showing a moderate quality. Results were as follows: (a) A considerable proportion of children experienced psychological maladjustment according to their parents; (b) studies on self-reported PA indicate a good outcome; (c) the studies on QoL suggest an impaired QoL for some children in particular for those with more severe cardiac disease; (d) parental reports of psychological maladjustment were related to severity of CHD and developmental delay.

CONCLUSION:

A significant proportion of survivors of open-heart surgery for CHD are at risk for psychological maladjustment and impaired QoL. Future research needs to focus on self-reports, QoL data and adolescents.

PMID:
19161602
[PubMed - indexed for MEDLINE]
PMCID:
PMC2642822
Free PMC Article
PubMed Commons home

PubMed Commons

0 comments
How to join PubMed Commons

    Supplemental Content

    Full text links

    Icon for BioMed Central Icon for PubMed Central Icon for PubMed Health
    Loading ...
    Write to the Help Desk