Display Settings:

Format

Send to:

Choose Destination
See comment in PubMed Commons below
Soc Sci Med. 2008 Sep;67(5):834-43. doi: 10.1016/j.socscimed.2008.05.023. Epub 2008 Jun 21.

Caring for independent lives: geographies of caring for young adults with intellectual disabilities.

Author information

  • Institute for Health Research, Lancaster University, Bowland Tower East, Lancaster, Lancashire LA1 4YT, UK. andrew.power@lancaster.ac.uk

Abstract

This paper engages with the emerging disciplinary clash between 'care' and 'independence' within disability studies by examining the geography of home care for young adults with intellectual disabilities. The care system as a whole is viewed as central to disablist structures within disability studies (see Thomas, C. (2007). Sociologies of disability and illness: Contested ideas in disability studies and medical sociology. Hampshire: Palgrave Macmillan.). However, despite the theorisation of dependency as being in antipathy to the goals of the disability movement, caregiving at home still continues to dominate community care. The paper attempts to address how family carers are 'caught-in-the-middle' between their 'duty' to care and at the same time, perpetuating dependency; the reality being that parents have to deal with issues of being overprotective and confronting various social assumptions about disability. It examines the narratives from 25 family caregivers in Ireland who provide personal assistance to young adults with intellectual disabilities.

PMID:
18573581
[PubMed - indexed for MEDLINE]
PubMed Commons home

PubMed Commons

0 comments
How to join PubMed Commons

    Supplemental Content

    Icon for Elsevier Science
    Loading ...
    Write to the Help Desk