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    J Autism Dev Disord. 2009 Jan;39(1):42-56. Epub 2008 Jun 6.

    Parents' experiences of home-based applied behavior analysis programs for young children with autism.

    Source

    Bangor University, Gwynedd, UK. c.grindle@bangor.ac.uk

    Abstract

    Although much research has documented the benefits to children with autism of early intensive behavioral intervention (EIBI), little has focused on the impact of EIBI on families. Using a semi-structured format, we interviewed 53 parents whose children had received 2 years of EIBI to obtain detailed first person accounts of the perceived benefits and pitfalls of running a home program, and the impact of EIBI on family life and support systems. In general, parents were positive about EIBI, its benefits for them, their child, and the broader family. Interviews also, however, revealed some of the more challenging aspects of managing home-based EIBI. The implications of these findings for more supportive interventions for families on home programs are discussed.

    PMID:
    18535893
    [PubMed - indexed for MEDLINE]

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