Gene therapy for children with cystic fibrosis--who has the right to choose?

J Med Ethics. 2006 Jun;32(6):361-4. doi: 10.1136/jme.2005.012740.

Authors

A Jaffé¹, S A Prasad, V Larcher, S Hart

Affiliation

¹ Portex Respiratory Medicine Group, Level 6 Cardiac Wing, Great Ormond Street Hospital for Children NHS Trust and Institute of Child Health, Great Ormond Street, London, WC1N 3JH, UK. a.jaffe@ich.ucl.ac.uk

Abstract

It may be unethical to deny children with cystic fibrosis access to ethically approved clinical trials from which they might benefit

Publication types

Research Support, Non-U.S. Gov't
Review

MeSH terms

Attitude to Health
Child
Clinical Trials as Topic / ethics
Cystic Fibrosis / genetics
Cystic Fibrosis / therapy*
Family
Genetic Therapy / ethics*
Humans
Informed Consent
Parents / psychology
Personal Autonomy