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J Intellect Disabil Res. 2005 Oct;49(Pt 10):777-83.

Conceptualizing and measuring family quality of life.

Author information

  • 1University of Kansas, Lawrence, KS 66045, USA. jsummers@ku.edu

Abstract

BACKGROUND:

Increasing emphasis on family-centred approaches to services and supports for families of children with disabilities has surfaced the issue of accountability for family outcomes. We present a review of literature about the impacts of children with disabilities on families as a backdrop to proposing family quality of life as a concept that encompasses impacts of disability and one that can be used to assess the impact of supports and services on families.

METHOD:

We briefly introduce the Beach Center Family Quality of Life Scale, providing information about its factor structure, reliability and convergent validity.

RESULTS:

The Beach Center Family Quality of Life Scale contains 25 items assessing family ratings of importance and satisfaction with five domains: Family interaction, Parenting, Emotional well-being, Physical/material well-being and Disability-related supports.

CONCLUSION:

We present a framework for utilizing a measure of family quality of life as a long-term outcome in concert with other short-term measures of service outcomes for families.

PMID:
16162127
[PubMed - indexed for MEDLINE]
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