Measurement of the experience of living with primary recurrent headache

Pain Manag Nurs. 2005 Mar;6(1):37-44. doi: 10.1016/j.pmn.2004.12.002.

Abstract

Recurrent primary headache is a major public health concern that impacts both society and the individual, reducing productivity and limiting participation in work, social, and leisure activities. The purpose of this study was to develop a valid and reliable instrument to measure the experience of living with chronic recurrent primary headache. This tool, Chronic Pain Experience Instrument-Headache Version (CPEI-HA), is intended to provide a measure of the affective component of headache that could complement the assessment of intensity, density, and disability. Psychometric testing of 25 items with a community-based headache sample ( N = 150) resulted in a 19-item tool with high internal consistency (alpha = .92). Principal components analysis was used to explore the meaning of the headache experience, and three underlying dimensions (i.e., Helplessness, Stress--Personal and Interpersonal, and Emotional Struggle) emerged to provide a better understanding of the experience. Construct validity was supported by the empiric relationships between the CPEI-HA and the eight theoretically related health concept subscales of the RAND 36-Item Health Survey 1.0. As predicted, all of the relationships were positive and in the moderate range (.31-.52). Findings suggest that the CPEI-HA has the potential for providing a valid and reliable tool for both clinical and research applications with persons who experience primary recurrent headaches.

Publication types

  • Research Support, Non-U.S. Gov't
  • Validation Study

MeSH terms

  • Activities of Daily Living
  • Adaptation, Psychological*
  • Adult
  • Affect
  • Aged
  • Attitude to Health*
  • Chronic Disease
  • Cost of Illness
  • Factor Analysis, Statistical
  • Female
  • Headache / epidemiology
  • Headache / prevention & control
  • Headache / psychology*
  • Helplessness, Learned
  • Humans
  • Interpersonal Relations
  • Male
  • Middle Aged
  • Nursing Methodology Research
  • Psychometrics
  • Quality of Life
  • Recurrence
  • Severity of Illness Index
  • Stress, Psychological / complications
  • Stress, Psychological / psychology
  • Surveys and Questionnaires / standards*