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Neurology. 2005 May 24;64(10):1780-2.

Caregiver burden and patients' perception of being a burden in ALS.

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  • 1Department of Neuroscience, University of Turin, Italy.


The determinants of ALS caregiver burden and the feeling of the patients as being a burden were assessed using the Caregiver Burden Inventory and the Self-Perceived Burden Scale in 60 caregiver-patient couples. Caregiver burden was correlated to their level of depression and quality of life and, differently from other chronic disorders, increased with the worsening of patients' disability. ALS patients have a good objective perception of their impact on caregivers.

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