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Qual Life Res. 2005 Mar;14(2):463-72.

Quality of life of caregivers in Parkinson's disease.

Author information

  • 1National Center for Epidemiology, Carlos III Institute of Public Health, Madrid, Spain. pmartinez@isciii.es

Abstract

OBJECTIVE:

To assess the impact of PD on informal caregivers of patients and identify the main factors related to caregiver strain.

PATIENTS AND METHODS:

Pairs of PD patients and their caregivers. Evaluation by neurologists included the Hoehn and Yahr, Schwab and England, UPDRS (parts 1-3), ISAPD, and Pfeiffer's SPMSQ rating scales. Patients completed the Euro-QoL 5D, PDQ-8, and Hospital Anxiety and Depression Scale. The SQLC was used to assess caregivers' quality of life (QoL), with caregivers, in turn, applying the Euro-QoL and PDQ-8 to assess patients' health-related quality of life (HRQoL). Multiple linear regression models were fitted to ascertain factors linked to the SQLC.

RESULTS:

Significant correlations were in evidence between the following scores: SQLC and clinical rating scales and SQLC and patients' HRQoL. Based on multiple regression analysis, patients' functional state (ADL) proved to be the main predictor of caregivers' QoL. Self- and caregiver-assessed patients' HRQoL also proved to be a relevant factor.

CONCLUSIONS:

(1) Patients' functional state was significantly related to caregivers' psychosocial burden; (2) patients' HRQoL proved to be an additional factor linked to caregiver QoL; (3) improvement of patient disability and HRQoL might alleviate caregiver strain.

PMID:
15892435
[PubMed - indexed for MEDLINE]
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