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Seizure. 2005 Apr;14(3):157-63.

Factors contributing to the stigma of epilepsy.

Author information

  • 1Department of Neurology, Asan Medical Center, University of Ulsan College of Medicine, Seoul, Republic of Korea. salee@amc.seoul.kr

Abstract

PURPOSE:

To evaluate the factors, including personality and coping styles, likely to be influential in enhancing the social stigma of epilepsy.

METHODS:

Data were collected from 400 adults with epilepsy recruited from 10 epilepsy centers in Korea. Clinical information about seizures was obtained by neurologists, and other information was collected from self-completed questionnaires, including those measuring stigma scales.

RESULTS:

Thirty-one percent of people with epilepsy felt stigmatized by their condition and in 9% of these the stigma was severe. Multivariate analysis identified experiences of actual discrimination from society, introverted personality, problem solving controllability, and emotional subscale of QOLIE-31 as being independently associated with the social stigma of epilepsy.

CONCLUSIONS:

Episodes of discrimination, coping strategies, and personality may be important in feeling the stigma of epilepsy. These findings may provide a basis for further studies to clarify the causative factors generating the stigma of epilepsy.

PMID:
15797349
[PubMed - indexed for MEDLINE]
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