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Neurology. 2002 Jan 22;58(2):320-2.

Comparison of instruments addressing quality of life in patients with ALS and their caregivers.

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  • 1Department of Neurology, University of Utah, Salt Lake City 84132, USA. mbromberg@hsc.utah.edu

Abstract

Most quality of life (QoL) instruments for ALS focus on function. An open instrument, the Schedule for the Evaluation of Individual Quality of Life-Direct Weight (SEIQoL-DW) that asks subjects to nominate and rate QoL areas important at the time of evaluation, was given to patients and caregiver spouses. Patients also completed function-based instruments. Correlations were poor between SEIQoL-DW and function-based instruments. SEIQoL-DW scores were worse for caregivers than for patients, probably explained by shifts in patient expectations with disease progression.

PMID:
11805269
[PubMed - indexed for MEDLINE]
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