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Study Description

This study contains all authorized aggregate genomic data from datasets currently in dbGaP that are approved for general research use (GRU) and have no further limitations beyond those outlined in model Data Use Certification Agreement. Access to this study will be granted for one year and any additional authorized aggregate GRU datasets that become available during this one-year period. This study does not include individual-level data.

  • Study Types: Collection, Aggregate Genomic Data
  • Number of study subjects that have individual level data available through Authorized Access: 0

Authorized Access
Publicly Available Data (Public ftp)

Connect to the public download site. The site contains release notes and manifests. If available, the site also contains data dictionaries, variable summaries, documents, and truncated analyses.

Study Inclusion/Exclusion Criteria

Data Included in this Study

  • Aggregate genomic data designated for general research use with no further use limitations or restrictions, i.e.,
    • Data use does not require approval by an Institutional Review Board for secondary analyses
    • Data have no publication embargo
    • Data have no other use limitations or requirements (e.g. collaboration, publication, restricted to use by not-for-profit or academic organizations, restricted to use for health, medical, and/or biomedical research)

Data Excluded from this Study

  • Individual-level data

Study History

In response to requests from the scientific community, the NIH implemented a change in the procedures for accessing aggregate-level data. Under the modified procedures, interested investigators can request all aggregate datasets designated for general research use with a single application. Additionally, to help expedite the processing of requests for aggregate genomic datasets, the requests will be reviewed by a single, central Data Access Committee. The request process for these datasets is identical to those for individual-level, controlled-access data, such as the expectation that investigators will abide by the NIH Policy for Sharing of Data Obtained in NIH Supported or Conducted Genome-Wide Association Studies and dbGaP Genomic User Code of Conduct.

Selected publications
Diseases/Traits Related to Study (MESH terms)
Authorized Data Access Requests