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J Natl Med Assoc. Jan 2002; 94(1): 31–39.
PMCID: PMC2594090

Increasing participation of minorities in cancer clinical trials: summary of the "Moving Beyond the Barriers" Conference in North Carolina.

Abstract

A day-long seminar was held at Wake Forest University School of Medicine to address barriers among ethnic minorities in cancer clinical trials and explore ways that individuals who design and conduct clinical trials could increase minority representation. Speakers addressed implications of under-representation of minorities and identified barriers to minority participation. State-wide focus group results were presented and revealed suspicion of medical research among minorities and the need for bridging to minority communities to improve participation in cancer clinical trials. Working groups assembled and identified barriers specific to trial design, providers, and participants. Attendees were encouraged to devise strategies within their institutions to overcome barriers to minority participation.

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Selected References

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  • Millon-Underwood S, Sanders E, Davis M. Determinants of participation in state-of-the-art cancer prevention, early detection/screening, and treatment trials among African-Americans. Cancer Nurs. 1993 Feb;16(1):25–33. [PubMed]
  • Gotay CC. Accrual to cancer clinical trials: directions from the research literature. Soc Sci Med. 1991;33(5):569–577. [PubMed]
  • Mouton CP, Harris S, Rovi S, Solorzano P, Johnson MS. Barriers to black women's participation in cancer clinical trials. J Natl Med Assoc. 1997 Nov;89(11):721–727. [PMC free article] [PubMed]
  • Swanson GM, Ward AJ. Recruiting minorities into clinical trials: toward a participant-friendly system. J Natl Cancer Inst. 1995 Dec 6;87(23):1747–1759. [PubMed]
  • Roberson NL. Clinical trial participation. Viewpoints from racial/ethnic groups. Cancer. 1994 Nov 1;74(9 Suppl):2687–2691. [PubMed]
  • Tangrea JA. Patient participation and compliance in cancer chemoprevention trials: issues and concerns. Proc Soc Exp Biol Med. 1997 Nov;216(2):260–265. [PubMed]
  • Lovato LC, Hill K, Hertert S, Hunninghake DB, Probstfield JL. Recruitment for controlled clinical trials: literature summary and annotated bibliography. Control Clin Trials. 1997 Aug;18(4):328–352. [PubMed]
  • Ross S, Grant A, Counsell C, Gillespie W, Russell I, Prescott R. Barriers to participation in randomised controlled trials: a systematic review. J Clin Epidemiol. 1999 Dec;52(12):1143–1156. [PubMed]
  • Langley C, Gray S, Selley S, Bowie C, Price C. Clinicians' attitudes to recruitment to randomised trials in cancer care: a qualitative study. J Health Serv Res Policy. 2000 Jul;5(3):164–169. [PubMed]
  • Baines CJ. Impediments to recruitment in the Canadian National Breast Screening Study: response and resolution. Control Clin Trials. 1984 Jun;5(2):129–140. [PubMed]
  • McCusker J, Wax A, Bennett JM. Cancer patient accessions into clinical trials: a pilot investigation into some patient and physician determinants of entry. Am J Clin Oncol. 1982 Apr;5(2):227–236. [PubMed]
  • Hunter CP, Frelick RW, Feldman AR, Bavier AR, Dunlap WH, Ford L, Henson D, Macfarlane D, Smart CR, Yancik R, et al. Selection factors in clinical trials: results from the Community Clinical Oncology Program Physician's Patient Log. Cancer Treat Rep. 1987 Jun;71(6):559–565. [PubMed]
  • Taylor KM, Margolese RG, Soskolne CL. Physicians' reasons for not entering eligible patients in a randomized clinical trial of surgery for breast cancer. N Engl J Med. 1984 May 24;310(21):1363–1367. [PubMed]
  • Areán PA, Gallagher-Thompson D. Issues and recommendations for the recruitment and retention of older ethnic minority adults into clinical research. J Consult Clin Psychol. 1996 Oct;64(5):875–880. [PubMed]
  • Atkins CJ, Patterson TL, Roppe BE, Kaplan RM, Sallis JF, Nadar PR. Recruitment issues, health habits, and the decision to participate in a health promotion program. Am J Prev Med. 1987 Mar-Apr;3(2):87–94. [PubMed]
  • Gorelick PB, Richardson D, Hudson E, Perry C, Robinson D, Brown N, Harris Y. Establishing a community network for recruitment of African Americans into a clinical trial. The African-American antiplatelet stroke Prevention Study (AAASPS) experience. J Natl Med Assoc. 1996 Nov;88(11):701–704. [PMC free article] [PubMed]
  • Macaulay AC, Cross EJ, Delormier T, Potvin L, Paradis G, McComber A. Developing a Code of Research Ethics for research with a Native community in Canada: a report from the Kahnawake Schools Diabetes Prevention Project. Int J Circumpolar Health. 1998;57 (Suppl 1):38–40. [PubMed]
  • Macaulay AC, Delormier T, McComber AM, Cross EJ, Potvin LP, Paradis G, Kirby RL, Saad-Haddad C, Desrosiers S. Participatory research with native community of Kahnawake creates innovative Code of Research Ethics. Can J Public Health. 1998 Mar-Apr;89(2):105–108. [PubMed]
  • Foster MW, Bernsten D, Carter TH. A model agreement for genetic research in socially identifiable populations. Am J Hum Genet. 1998 Sep;63(3):696–702. [PMC free article] [PubMed]
  • Schell LM, Tarbell AM. A partnership study of PCBs and the health of Mohawk youth: lessons from our past and guidelines for our future. Environ Health Perspect. 1998 Jun;106 (Suppl 3):833–840. [PMC free article] [PubMed]
  • Hertert S, Bailey G, Cottinghan V, Carmody S, Egan D, Johnson P, Probstfield J. Community volunteers as recruitment staff in a clinical trial: the systolic hypertension in the elderly program (SHEP) experience. Control Clin Trials. 1996 Feb;17(1):23–32. [PubMed]
  • Norton IM, Manson SM. Research in American Indian and Alaska Native communities: navigating the cultural universe of values and process. J Consult Clin Psychol. 1996 Oct;64(5):856–860. [PubMed]

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