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J Epidemiol Community Health. 2003 Jan; 57(1): 68–73.
PMCID: PMC1732282

Collecting behavioural data using the world wide web: considerations for researchers


Objective: To identify and describe advantages, challenges, and ethical considerations of web based behavioural data collection.

Methods: This discussion is based on the authors' experiences in survey development and study design, respondent recruitment, and internet research, and on the experiences of others as found in the literature.

Results: The advantages of using the world wide web to collect behavioural data include rapid access to numerous potential respondents and previously hidden populations, respondent openness and full participation, opportunities for student research, and reduced research costs. Challenges identified include issues related to sampling and sample representativeness, competition for the attention of respondents, and potential limitations resulting from the much cited "digital divide", literacy, and disability. Ethical considerations include anonymity and privacy, providing and substantiating informed consent, and potential risks of malfeasance.

Conclusions: Computer mediated communications, including electronic mail, the world wide web, and interactive programs will play an ever increasing part in the future of behavioural science research. Justifiable concerns regarding the use of the world wide web in research exist, but as access to, and use of, the internet becomes more widely and representatively distributed globally, the world wide web will become more applicable. In fact, the world wide web may be the only research tool able to reach some previously hidden population subgroups. Furthermore, many of the criticisms of online data collection are common to other survey research methodologies.

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Selected References

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  • Baujard O, Baujard V, Aurel S, Boyer C, Appel RD. Trends in medical information retrieval on Internet. Comput Biol Med. 1998 Sep;28(5):589–601. [PubMed]
  • Kim HS, Kim E, Kim JW. Development of a breast self-examination program for the Internet: health information for Korean women. Cancer Nurs. 2001 Apr;24(2):156–161. [PubMed]
  • Hardin PC, Reis J. Interactive multimedia software design: concepts, process, and evaluation. Health Educ Behav. 1997 Feb;24(1):35–53. [PubMed]
  • Soetikno RM, Provenzale D, Lenert LA. Studying ulcerative colitis over the World Wide Web. Am J Gastroenterol. 1997 Mar;92(3):457–460. [PubMed]
  • Coiera E. Information economics and the Internet. J Am Med Inform Assoc. 2000 May-Jun;7(3):215–221. [PMC free article] [PubMed]
  • Fotheringham MJ, Wonnacott RL, Owen N. Computer use and physical inactivity in young adults: public health perils and potentials of new information technologies. Ann Behav Med. 2000 Fall;22(4):269–275. [PubMed]
  • Paperny DM. Computerized health assessment and education for adolescent HIV and STD prevention in health care settings and schools. Health Educ Behav. 1997 Feb;24(1):54–70. [PubMed]
  • Rhodes F, Fishbein M, Reis J. Using behavioral theory in computer-based health promotion and appraisal. Health Educ Behav. 1997 Feb;24(1):20–34. [PubMed]
  • Bennett SJ, Hays LM, Embree JL, Arnould M. Heart Messages: a tailored message intervention for improving heart failure outcomes. J Cardiovasc Nurs. 2000 Jul;14(4):94–105. [PubMed]
  • Johnson KB, Ravert RD, Everton A. Hopkins Teen Central: Assessment of an internet-based support system for children with cystic fibrosis. Pediatrics. 2001 Feb;107(2):E24–E24. [PubMed]
  • Marcus BH, Nigg CR, Riebe D, Forsyth LH. Interactive communication strategies: implications for population-based physical-activity promotion. Am J Prev Med. 2000 Aug;19(2):121–126. [PubMed]
  • Tate DF, Wing RR, Winett RA. Using Internet technology to deliver a behavioral weight loss program. JAMA. 2001 Mar 7;285(9):1172–1177. [PubMed]
  • Klausner JD, Wolf W, Fischer-Ponce L, Zolt I, Katz MH. Tracing a syphilis outbreak through cyberspace. JAMA. 2000 Jul 26;284(4):447–449. [PubMed]
  • Kushi LH, Finnegan J, Martinson B, Rightmyer J, Vachon C, Yochum L. Epidemiology and the Internet. Epidemiology. 1997 Nov;8(6):689–690. [PubMed]
  • Houston JD, Fiore DC. Online medical surveys: using the Internet as a research tool. MD Comput. 1998 Mar-Apr;15(2):116–120. [PubMed]
  • Baehring TU, Schulze H, Bornstein SR, Scherbaum WA. Using the World Wide Web--a new approach to risk identification of diabetes mellitus. Int J Med Inform. 1997 Aug;46(1):31–39. [PubMed]
  • Ross MW, Tikkanen R, Månsson SA. Differences between Internet samples and conventional samples of men who have sex with men: implications for research and HIV interventions. Soc Sci Med. 2000 Sep;51(5):749–758. [PubMed]
  • Rhodes SD, DiClemente RJ, Yee LJ, Hergenrather KC. Correlates of hepatitis B vaccination in a high-risk population: an Internet sample. Am J Med. 2001 Jun 1;110(8):628–632. [PubMed]
  • Etter JF, Perneger TV. A comparison of cigarette smokers recruited through the Internet or by mail. Int J Epidemiol. 2001 Jun;30(3):521–525. [PubMed]
  • Houston TK, Cooper LA, Vu HT, Kahn J, Toser J, Ford DE. Screening the public for depression through the Internet. Psychiatr Serv. 2001 Mar;52(3):362–367. [PubMed]
  • Rhodes SD, Diclemente RJ, Yee LJ, Hergenrather KC. Factors associated with testing for hepatitis C in an internet-recruited sample of men who have sex with men. Sex Transm Dis. 2001 Sep;28(9):515–520. [PubMed]
  • Cassell MM, Jackson C, Cheuvront B. Health communication on the Internet: an effective channel for health behavior change? J Health Commun. 1998 Jan-Mar;3(1):71–79. [PubMed]
  • Clark TJ, Khan KS, Gupta JK. Provision of pen along with questionnaire does not increase the response rate to a postal survey: a randomised controlled trial. J Epidemiol Community Health. 2001 Aug;55(8):595–596. [PMC free article] [PubMed]
  • McAvoy BR, Kaner EF. General practice postal surveys: a questionnaire too far? BMJ. 1996 Sep 21;313(7059):732–734. [PMC free article] [PubMed]
  • Alexander RB, Trissel D. Chronic prostatitis: results of an Internet survey. Urology. 1996 Oct;48(4):568–574. [PubMed]
  • Davis RN. Web-based administration of a personality questionnaire: comparison with traditional methods. Behav Res Methods Instrum Comput. 1999 Nov;31(4):572–577. [PubMed]
  • Joinson A. Social desirability, anonymity, and Internet-based questionnaires. Behav Res Methods Instrum Comput. 1999 Aug;31(3):433–438. [PubMed]
  • Malone RE. Research, the Internet, and the way things are. Health Educ Behav. 2000 Dec;27(6):695–698. [PubMed]
  • Budman SH. Behavioral health care dot-com and beyond: computer-mediated communications in mental health and substance abuse treatment. Am Psychol. 2000 Nov;55(11):1290–1300. [PubMed]
  • Fawcett J, Buhle EL., Jr Using the Internet for data collection. An innovative electronic strategy. Comput Nurs. 1995 Nov-Dec;13(6):273–279. [PubMed]
  • Yokley JM, Coleman DJ, Yates BT. Cost effectiveness of three child mental health assessment methods: computer-assisted assessment is effective and inexpensive. J Ment Health Adm. 1990 Spring;17(1):99–107. [PubMed]
  • Hilsden RJ, Scott CM, Verhoef MJ. Research and the Internet. Am J Gastroenterol. 1998 Mar;93(3):484–485. [PubMed]
  • Rhodes SD, Diclemente RJ, Yee LJ, Hergenrather KC. Hepatitis B vaccination in a high risk MSM population: the need for vaccine education. Sex Transm Infect. 2000 Oct;76(5):408–409. [PMC free article] [PubMed]
  • Sy FS, Rhodes SD, Choi ST, Drociuk D, Laurent AA, Naccash RM, Kettinger LD. The acceptability of oral fluid testing for HIV antibodies. A pilot study in gay bars in a predominantly rural state. Sex Transm Dis. 1998 Apr;25(4):211–215. [PubMed]
  • Serraino D, Franceschi S, Dal Maso L, Lepri AC, Tirelli U, Rezza G. The classification of AIDS cases: concordance between two AIDS surveillance systems in Italy. Am J Public Health. 1995 Aug;85(8 Pt 1):1112–1114. [PMC free article] [PubMed]
  • Fishbein M, Pequegnat W. Evaluating AIDS prevention interventions using behavioral and biological outcome measures. Sex Transm Dis. 2000 Feb;27(2):101–110. [PubMed]
  • Pequegnat W, Fishbein M, Celentano D, Ehrhardt A, Garnett G, Holtgrave D, Jaccard J, Schachter J, Zenilman J. NIMH/APPC workgroup on behavioral and biological outcomes in HIV/STD prevention studies: a position statement. Sex Transm Dis. 2000 Mar;27(3):127–132. [PubMed]
  • Bernhardt JM. Health education and the digital divide: building bridges and filling chasms. Health Educ Res. 2000 Oct;15(5):527–531. [PubMed]
  • Sorensen AA. Promoting public health through electronic media: a challenge for schools of public health. Am J Public Health. 2001 Aug;91(8):1183–1185. [PMC free article] [PubMed]
  • Milio N. The internet, public health, and the globalisation of just about everything. J Epidemiol Community Health. 2001 Feb;55(2):74–76. [PMC free article] [PubMed]
  • Rhodes Scott D, DiClemente Ralph J, Cecil Heather, Hergenrather Kenneth C, Yee Leland J. Risk among men who have sex with men in the United States: a comparison of an Internet sample and a conventional outreach sample. AIDS Educ Prev. 2002 Feb;14(1):41–50. [PubMed]
  • Nicholson T, White J, Cline R, Minors P, Duncan D. Parents who report using illicit drugs: findings and implications from the DRUGNET study. Psychol Rep. 2001 Feb;88(1):245–251. [PubMed]
  • Reneau J, Nicholson T, White JB, Duncan D. The general well-being of recreational drug users: a survey on the WWW. Int J Drug Policy. 2000 Sep 1;11(5):315–323. [PubMed]
  • Humphreys K, Klaw E. Can targeting nondependent problem drinkers and providing internet-based services expand access to assistance for alcohol problems? A study of the moderation management self-help/mutual aid organization. J Stud Alcohol. 2001 Jul;62(4):528–532. [PubMed]
  • Lakeman R. Using the Internet for data collection in nursing research. Comput Nurs. 1997 Sep-Oct;15(5):269–275. [PubMed]
  • Bush NE, Wooldridge J, Foster V, Shaw K, Brown P. Web site design and development issues: the Washington State Breast and Cervical Health Program Web Site Demonstration Project. Oncol Nurs Forum. 1999 Jun;26(5):857–865. [PubMed]
  • Bier Melinda C, Sherblom Stephen A, Gallo Michael A. Ethical issues in a study of Internet use: uncertainty, responsibility, and the spirit of research relationships. Ethics Behav. 1996;6(2):141–151. [PubMed]

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