The Committee is grateful to many individuals who provided valuable input and information for the study, either through formal presentations or through informal communications with study staff and Committee members. Contributors to the study include: Joan E. Bailey-Wilson (National Institutes of Health), Mark Barnes (Huron Consulting Group), Marianna Bledsoe (National Institutes of Health, Office of Science Policy), Stefan Brands (Credentica), Suanna Bruinooge (American Society of Clinical Oncology), Robert Califf (Duke Translational Medicine Institute), Fred H. Cate (Indiana University School of Law), Janlori Goldman (Columbia University, Mailman School of Public Health), Elizabeth Goss (American Society of Clinical Oncology), Sarah Greene (HMO Research Network), Christina Heide (Department of Health and Human Services, Office for Civil Rights), David Helms (AcademyHealth), James Hodge (Johns Hopkins Bloomberg School of Public Health), Judd Hollander (Society for Academic Emergency Medicine), Holly Howe (North American Association of Central Cancer Registries), International Pharmaceutical Privacy Consortium, Katherine Kahn (University of California, Los Angeles), Murat Kantarcioglu (University of Texas at Dallas), Anthony Knettel (Association of Academic Health Centers), Elizabeth Mayer-Davis (University of South Carolina), Roberta Ness (University of Pittsburgh), Rachel Nosowsky (Miller, Canfield, Paddock and Stone, PLC), Ann O’Mara (National Cancer Institute, Community Clinical Oncology Program), John Pandiani (The Bristol Observatory), Wendy Patterson (National Cancer Institute), Deborah Peel (Patient Privacy Rights), Joy Pritts (Georgetown Health Policy Institute), John Ring (American Heart Association), Kristin Rosati (Coppersmith Gordon Schermer & Brokelman, PLC), Mark Rothstein (University of Louisville), Elaine Rubin (Association of Academic Health Centers), Richard Schilsky (University of Chicago), Frank L. Silver (Registry of the Canadian Stroke Network), Lana Skirboll (National Institutes of Health, Office of Science Policy), Penelope Solis (American Heart Association), Ed Wagner (HMO Research Network), Alan Westin (Privacy Consulting Group), Marcy Wilder (Hogan & Hartson, L.L.P.), and Marsha Young (Booz Allen Hamilton).
National Academies Press (US), Washington (DC)
Institute of Medicine (US) Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule; Nass SJ, Levit LA, Gostin LO, editors. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington (DC): National Academies Press (US); 2009. Acknowledgments.