NCBI Bookshelf. A service of the National Library of Medicine, National Institutes of Health.

Institute of Medicine (US) Committee on the Review and Assessment of the NIH’s Strategic Research Plan and Budget to Reduce and Ultimately Eliminate Health Disparities; Thomson GE, Mitchell F, Williams MB, editors. Examining the Health Disparities Research Plan of the National Institutes of Health: Unfinished Business. Washington (DC): National Academies Press (US); 2006.

Cover of Examining the Health Disparities Research Plan of the National Institutes of Health

Examining the Health Disparities Research Plan of the National Institutes of Health: Unfinished Business.

Show details

References

  1. Ard JD, Carter-Edwards L, Svetkey LP. A new model for developing and executing culturally appropriate behavior modification clinical trials for African Americans. Ethnicity and Disease. 2003;13(2):279–285. [PubMed: 12785426]
  2. Ard JD, Durant RW, Edwards LC, Svetkey LP. Perceptions of African-American culture and implications for clinical trial design. Ethnicity and Disease. 2005;15(2):292–299. [PubMed: 15825976]
  3. Aungst J, Haas A, Ommaya A, Green LW, editors. Exploring Challenges, Progress, and New Models for Engaging the Public in the Clinical Research Enterprise: Clinical Research Roundtable Workshop Summary. Washington, DC: The National Academies Press; 2003.
  4. Baum A, Garofalo JP, Yali AM. Socioeconomic status and chronic stress: Does stress account for SES effects on health? In: Adler N, Marmot M, McEwen BS, Stewart J, editors. Socioeconomic Status and Health in Industrial Nations. New York: Annals of the New York Academy of Sciences; 1999. pp. 131–144. [PubMed: 10681894]
  5. Braveman P, Gruskin S. Defining equity in health. Journal of Epidemiology and Community Health. 2003;57:254–258. [PMC free article: PMC1732430] [PubMed: 12646539]
  6. Brooks K, Fessler BJ, Bastian H, Alarcón GS. Sociocultural issues in clinical research. Arthritis Care and Research. 2001;45(2):203–207. [PubMed: 11324785]
  7. Brunner E, Marmot M. Social organization, stress and health. In: Marmot M, Wilkinson RG, editors. Social Determinants of Health. Oxford, UK: Oxford University Press; 1999. pp. 17–43.
  8. Building Engineering and Science Talent. A Bridge for All: Higher Education Design Principles to Broaden Participation in Science, Technology, Engineering and Mathematics. San Diego, CA: Building Engineering and Science Talent; 2004.
  9. Bulatao RA, Anderson NB, editors. Understanding Racial Differences in Health in Late Life: A Research Agenda. Washington, DC: The National Academies Press; 2004.
  10. Carter-Pokras O, Banquet C. What is a “health disparity”? Public Health Reports. 2002;117:426–434. [PMC free article: PMC1497467] [PubMed: 12500958]
  11. CDC (Centers for Disease Control and Prevention) Recruiting black men to a clinical trial to evaluate prostate cancer screening Detroit, Michigan, 1998. Morbidity and Mortality Weekly Report. 1998;47(33):964–966. [PubMed: 9733417]
  12. Committee for the Assessment of NIH Minority Research Training Programs, Oversight Committee for the Assessment of NIH Minority Research Training Programs, Board on Higher Education and Workforce, National Research Council. Assessment of NIH Minority and Research Training Programs. Washington, DC: The National Academies Press; 2005.
  13. Committee on National Needs for Biomedical and Behavioral Scientists, Education and Career Studies Unit, National Research Council. Addressing the Nation’s Changing Needs for Biomedical and Behavior Scientists, Phase 3. Washington, DC: National Academy Press; 2000.
  14. Committee on the Future of Rural Health Care, Institute of Medicine. Quality Through Collaboration: The Future of Rural Health Care. Washington, DC: The National Academies Press; 2005.
  15. Committee on the Organizational Structure of the National Institutes of Health National Research Council. Enhancing the Vitality of the National Institutes of Health: Organizational Change to Meet New Challenges. Washington, DC: The National Academies Press; 2003. [PubMed: 20669477]
  16. Congressional Commission on the Advancement of Women and Minorities in Science, Engineering and Technology Development. Land of Plenty: Diversity as America’s Competitive Edge in Science, Engineering, and Technology. 2000. [accessed November 14, 2005]. [Online]. Available: http://www​.nsf.gov/od/cawmset/
  17. Corbie-Smith G, Thomas SB, Williams MV, Moody-Ayers S. Attitudes and beliefs of African Americans toward participation in medical research. Journal of General Internal Medicine. 1999;14(9):537–546. [PMC free article: PMC1496744] [PubMed: 10491242]
  18. Eberhardt MS, Pamuk ER. The importance of place of residence: Examining health in rural and nonrural areas. American Journal of Public Health. 2004;94(10):1682–1686. [PMC free article: PMC1448515] [PubMed: 15451731]
  19. Farmer MM, Ferraro KF. Are racial disparities in health conditional on socioeconomic status? Social Science and Medicine. 2005;60(1):191–204. [PubMed: 15482878]
  20. Fremont A, Lurie N. The role of racial and ethnic data collection in eliminating disparities in health care. In: Ver Ploeg M, Perrin E, editors. Eliminating Health Disparities: Measurement and Data Needs. Washington, DC: The National Academies Press; 2004. pp. 202–231.
  21. Gebbie K, Rosenstock L, Hernandez LM, editors. Committee on Educating Public Health Professionals for the 21st Century, Who Will Keep the Public Healthy? Educating Public Health Professionals for the 21st Century. Washington, DC: The National Academies Press; 2003.
  22. George YS, Neale DS, Van Horne V, Malcom SM. In Pursuit of a Diverse Science, Technology, Engineering, and Mathematics Workforce: Recommended Research Priorities to Enhance Participation by Underrepresented Minorities. Washington, DC: American Association for the Advancement of Science; 2001.
  23. Harris Y, Gorelick PB, Samuels P, Bempong I. Why African Americans may not be participating in clinical trials. Journal of the National Medical Association. 1996;88(10):630–634. [PMC free article: PMC2608128] [PubMed: 8918067]
  24. Harrison RW III. Impact of biomedical research on African Americans. Journal of the National Medical Association. 2001;93(3 Supplement):6S–7S. [PMC free article: PMC2593959] [PubMed: 12653393]
  25. Hartley D. Rural health disparities, population health, and rural culture. American Journal of Public Health. 2004;94(10):1675–1678. [PMC free article: PMC1448513] [PubMed: 15451729]
  26. Haynes MA, Smedley BD, editors. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: National Academy Press; 1999.
  27. Health Resources Administration. Health Status of Minorities and Low Income Groups. Washington, DC: U.S. Department of Health, Education, and Welfare; 1979. [HRA 79-627]
  28. Hertzman C. Population health and human development. In: Keating DP, Hertzman C, editors. Developmental Health and the Wealth of Nations: Social, Biological, and Educational Dynamics. New York: Guildford Press; 1999. pp. 21–40.
  29. Holkup P, Tripp-Reimer T, Salois E, Weinert C. Community-based participatory research: An approach to intervention research with a Native American community. Advances in Nursing Science. 2004;27:162–175. [PMC free article: PMC2774214] [PubMed: 15455579]
  30. House JS. Understanding social factors and inequalities in health: 20th century progress and 21st century prospects. Journal of Health and Social Behavior. 2002;43:125–142. [PubMed: 12096695]
  31. House JS, Williams D. Understanding and reducing socioeconomic and racial/ethnic disparities in health. In: Smedley BD, Syme SL, editors. Promoting Health: Intervention Strategies from Social and Behavioral Research. Washington, DC: National Academy Press; 2000. pp. 81–124.
  32. Howard BV, Lee ET, Cowan LD, Devereux RB, Galloway JM, Go OT, Howard WJ, Rhoades ER, Robbins DC, Sievers ML, Welty TK. Rising tide of cardiovascular disease in American Indians. The Strong Heart Study. Circulation. 1999;99:2389–2395. [PubMed: 10318659]
  33. Israel BA, Schulz EP, Becker A. Review of community-based research: Assessing partnership approaches to improve public health. Annual Review of Public Health. 1998;19:173–202. [PubMed: 9611617]
  34. Jackson SA. Envisioning a 21st Century Science and Engineering Workforce for the United States. Washington, DC: The National Academies Press; 2003.
  35. Kane C. Testimony to the Committee on the Review and Assessment of the NIH’s Strategic Research Plan and Budget to Reduce and Ultimately Eliminate Health Disparities; Washington, DC. December 10, 2004.2004.
  36. Kaplan GA. Part III summary: What is the role of the social environment in understanding inequalities in health? In: Adler NE, Marmot M, McEwen B, Stewart J, editors. Socioeconomic Status and Health in Industrialized Nations. New York: Annals of the New York Academy of Sciences; 1999. pp. 116–119.
  37. Kawachi I, Daniels N, Robinson DE. Health disparities by race and class: Why both matter. Health Affairs. 2005;24(2):343–352. [PubMed: 15757918]
  38. Kellogg Community Health Scholars Program. Community Health Scholars Program. 2005. [accessed September 2, 2005]. [Online]. Available: http://www​.sph.umich​.edu/chsp/program/index.shtml.
  39. Keppel K, Pamuk E, Lynch J, Carter-Pokras O, Kim I, Mays VM, et al. Methodological issues in measuring health disparities. National Center for Health Statistics. Vital Health Statistics. 2005;2(141):1–16. [PMC free article: PMC3681823] [PubMed: 16032956]
  40. Kington R. Fiscal Year 2006 Budget Request: Congressional Justification. 2005. [accessed November 15, 2005]. [Online]. Available: http://odeo​.od.nih.gov​/pubs/FY2006BudgetRequest.pdf.
  41. Kington R, Tisnado D, Carlisle DM. Increasing racial and ethnic diversity among physicians: An intervention to address health disparities? In: Smedley BD, Stith AY, Colburn L, Evans C, editors. Summary of the Symposium on Diversity in Health Professions and in Honor of Herbert W Nickens, MD The Right Thing to Do, the Smart Thing to Do: Enhancing Diversity in the Health Professions. Washington, DC: National Academy Press; 2001. pp. 57–90.
  42. Kreiger N. Defining and investigating social disparities in cancer: Critical issues. Cancer Causes and Control. 2005;16(1):5–14. [PubMed: 15750853]
  43. Kuh D, Ben-Shlomo Y. A Life Course Approach to Chronic Disease Epidemiology. Oxford, UK: Oxford University Press; 1997.
  44. Kuh D, Power C, Blane D, Bartley M. Social pathways between childhood and adult health. In: Kuh D, Ben-Shlomo Y, editors. A Life Course Approach to Chronic Disease Epidemiology. Oxford, UK: Oxford University Press; 1997. pp. 169–200.
  45. Lantz P, Viruell-Fuentes E, Israel B, Softley D, Guzman R. Can communities and academia work together on public health research? Evaluation results from a community-based participatory research partnership in Detroit. Journal of Urban Health: Bulletin of the New York Academy of Medicine. 2001;78:495–507. [PMC free article: PMC3455911] [PubMed: 11564852]
  46. Lee ET, Cowan LD, Welty TK, Sievers M, Howard WJ, Oopik A, Wang W, Yeh J, Devereux RB, Rhoades ER, Fabsitz RR, Go O, Howard BV. All-cause mortality and cardiovascular disease mortality in three American Indian populations, aged 45–74 years, 1984–1988. The Strong Heart Study. American Journal of Epidemiology. 1998;147:995–1008. [PubMed: 9620042]
  47. Lenfant C. Clinical research to clinical practice—lost in translation? New England Journal of Medicine. 2003;349:868–874. [PubMed: 12944573]
  48. Lillie-Blanton M, LaVeist T. Race/ethnicity, the social environment, and health. Social Science and Medicine. 1996;43(1):83–91. [PubMed: 8816013]
  49. McEwen BS. Stress, adaptation, and disease: Allostasis and allostatic load. Annals of the New York Academy of Sciences. 1998;840:33–44. [PubMed: 9629234]
  50. McEwen BS, Stellar E. Stress and the individual: Mechanisms leading to disease. Archives of Internal Medicine. 1993;153:2093–2101. [PubMed: 8379800]
  51. McGeary M, Smith PM. Organizational Structure of the National Institutes of Health. Background Paper for the National Academies Committee on the Organizational Structure of the NIH. Washington, DC: National Academy Press; 2002.
  52. Morton CC. Health disparities a top NIH priority, says Director Zerhouni, Harvard Public Health NOW. Apr 29, 2005. [accessed November 14, 2005]. [Online]. Available: http://www​.hsph.harvard​.edu/now/apr29/disparities.html.
  53. National Science and Technology Council. Ensuring a Strong U.S. Scientific, Technical, and Engineering Workforce in the 21st Century. 2000. [accessed November 28, 2005]. [Online]. Available: http://www​.ostp.gov/html/workforcerpt​.pdf.
  54. National Science Board. The Science and Engineering Workforce; Realizing America’s Potential. Washington, DC: National Science Foundation; 2003.
  55. NCHS (National Center for Health Statistics) Health, United States, 2004 Edition with Chartbook on Trends in the Health of Americans. Hyattsville, MD: Government Printing Office; 2004.
  56. NCHS. Special Tabulation for the Committee on the Review and Assessment of the NIH’s Strategic Research Plan and Budget to Reduce and Ultimately Eliminate Health Disparities. 2006 [PubMed: 21850786]
  57. NCMHD (National Center on Minority Health and Health Disparities) NIH Strategic Research Plan and Budget to Reduce and Ultimately Eliminate Health Disparities, Fiscal Years 2002–2006; Public Comments 2004. Bethesda, MD: NCMHD; 2004.
  58. NCMHD. About NCMHD Centers of Excellence. 2005. [accessed August 13, 2005]. [Online]. Available: http://www​.ncmhd.nih​.gov/our_programs/excellence/index.asp.
  59. NCMHD. Loan Repayment Program. 2005. [accessed August 13, 2005]. [Online]. Available: http://www​.ncmhd.nih​.gov/our_programs/loan/index.asp.
  60. NCMHD. NCMHD Research Endowment Program. 2005. [accessed August 13, 2005]. [Online]. Available: http://www​.ncmhd.nih​.gov/our_programs/endowment/index.asp.
  61. NIH (National Institutes of Health) National Institutes of Health Strategic Research Plan to Reduce and Ultimately Eliminate Health Disparities, Fiscal Years 2002–2006. 2000. [accessed September 2, 2005]. DRAFT: October 6, 2000. [Online]. Available: http://www​.nih.gov/about​/hd/strategicplan.pdf.
  62. NIH. National Institutes of Health Strategic Plan to Reduce and Ultimately Eliminate Health Disparities 2002–2006. 2003. [accessed November 28, 2005]. [Online]. Available: http://ncmhd​.nih.gov​/our_programs/strategic/volumes.asp.
  63. NIH. Data provided to the Committee on the Review and Assessment of the NIH’s Strategic Research Plan and Budget to Reduce and Ultimately Eliminate Health Disparities by the NIH Office of Budget, Office of the Director. 2005
  64. NIH Office of Budget. National Institutes of Health Appropriations History by Institute and Center. 2005. [accessed November 28, 2005]. [Online]. Available: http:​//officeofbudget​.od.nih.gov/UI/AppropriationsHistoryByIC.htm.
  65. Noah BA. The participation of underrepresented minorities in clinical research. American Journal of Law, Medicine, and Ethics. 2003;29:221–245. [PubMed: 12961806]
  66. O’Fallon L, Dearry A. Community-based participatory research as a tool to advance environmental health sciences. Environmental Health Perspectives. 2002;110:155–159. [PMC free article: PMC1241159] [PubMed: 11929724]
  67. ORWH (Office of Research on Women’s Health) Monitoring Adherence to the NIH Policy on the Inclusion of Women and Minorities as Subjects in Clinical Research. Comprehensive Report: Tracking of Human Subjects Research as Reported in Fiscal Year 2003 and Fiscal Year 2004. Bethesda, MD: NIH; 2005.
  68. Partridge EE, Fouad MN, Hinton AW, Hardy CM, Liscovicz N, White-Johnson F, et al. The Deep South Network for Cancer Control: Eliminating cancer disparities through community-academic collaboration. Family and Community Health. Decreasing Health Disparities. 2005;28(1):6–19. [PubMed: 15625502]
  69. Powe NR, Yeung EH. Results of a Questionnaire to Assess Progress on NIH Research and Programs on Minority Health and Health Disparities; Unpublished background paper for the National Academies IOM Committee on the Review and Assessment of the NIH’s Strategic Research Plan and Budget to Reduce and Ultimately Eliminate Health Disparities.2005.
  70. Probst JC, Moore CG, Glover SH, Samuels ME. Person and place: The compounding effects of race/ethnicity and rurality on health. American Journal of Public Health. 2004;94:1695–1703. [PMC free article: PMC1448519] [PubMed: 15451735]
  71. Rhoades DA. Racial misclassification and disparities in cardiovascular disease among American Indians and Alaska Natives. Circulation. 2005;111:1250–1256. [PubMed: 15769765]
  72. Rosenberg HM, Maurer JD, Sorlie PD, Johnson NJ, MacDorman MF, Hoyert DL, Spitler JF, Scott C. Quality of death rates by race and Hispanic-origin, a summary of current research. Vital Health Statistics. 1999;2:1–13. [PubMed: 10611854]
  73. Ruffin J. Testimony to the Committee on the Review and Assessment of the NIH’s Strategic Research Plan and Budget to Reduce and Ultimately Eliminate Health Disparities; Washington, DC. October 6, 2004.2004.
  74. Ruffin J. Fiscal Year 2006 Budget Request: Congressional Justification. Washington, DC: Department of Health and Human Services, National Institutes of Health; 2005. [accessed November 28, 2005]. [Online]. Available: http://ncmhd​.nih.gov​/about_ncmhd/JRuffinTestimonyAppropsMarch2005.pdf.
  75. Seeman TS. Racial/Ethnic and Socioeconomic Disparities in Health: How Socioeconomic Status Gets “Under the Skin.”. Washington, DC: National Press Club; 2004.
  76. Sehgal AR. Impact of quality improvement efforts on race and sex disparities in hemodialysis. Journal of the American Medical Association. 2003;289(8):996–1000. [PubMed: 12597751]
  77. Shavers-Hornaday VL, Lynch CF, Burmeister LF, Torner JC. Why are African Americans under-represented in medical research studies? Impediments to participation. Ethnicity and Health. 1997;2(1/2):31–45. [PubMed: 9395587]
  78. Singer B, Ryff C, editors. New Horizons in Health: An Integrative Approach. Washington, DC: National Academy Press; 2001.
  79. Smedley BD, Stith AY, Nelson AR, editors. Unequal Treatment: Confronting Racial and Ethnic Disparities in Healthcare. Washington, DC: The National Academies Press; 2003.
  80. Smedley BD, Stith Butler A, Bristow LR, editors. In the Nation’s Compelling Interest: Ensuring Diversity in the Health-Care Workforce. Washington, DC: The National Academies Press; 2004.
  81. Spruill I. Project Sugar: A recruitment model for successful African-American participation in health research. Journal of the National Black Nurses Association. 2004;15(2):48–53. [PubMed: 15853286]
  82. Sullivan L. Testimony to the Committee on the Review and Assessment of the NIH’s Strategic Research Plan and Budget to Reduce and Ultimately Eliminate Health Disparities; Washington, DC. December 10, 2004.2004.
  83. U.S. DHHS (U.S. Department of Health and Human Services) Report of the Secretary’s Task Force on Black and Minority Health. Washington, DC: U.S. Government Printing Office; 1985.
  84. U.S. DHHS. Healthy People 2000: National Health Promotion and Disease Prevention Objectives. Washington, DC: Public Health Service; 1991.
  85. U.S. DHHS. Healthy People 2010 2nd ed With Understanding and Improving Health and Objectives for Improving Health. Washington, DC: U.S. Government Printing Office; 2000.
  86. U.S. DHHS. NIH Tracking/Inclusion Committee: Comprehensive Report: Tracking of Human Subjects Research as Reported in Fiscal Year 2003 and Fiscal Year 2004 Monitoring Adherence to the NIH Policy on the Inclusion of Women and Minorities as Subjects in Clinical Research. Bethesda, MD: National Institutes of Health; 2005.
  87. U.S. Public Health Administration. Healthy People: The Surgeon General’s Report on Health Promotion and Disease Prevention. Washington, DC: U.S. Department of Health, Education, and Welfare; 1979. [PHS 79-55071]
  88. Ver Ploeg M, Perrin E, editors. Eliminating Health Disparities: Measurement and Data Needs Panel on DHHS Collection of Race and Ethnic Data. Washington, DC: The National Academies Press; 2004.
  89. Weitz TA, Freund KM, Wright L. Identifying and caring for underserved populations: Experience of the National Centers of Excellence in Women’s Health. Journal of Women’s Health and Gender-Based Medicine. 2001;10(10):937–952. [PubMed: 11788105]
  90. Whitehead M. The concepts and principles of equity and health. International Journal of Health Services. 1992;22(3):429–445. [PubMed: 1644507]
  91. Williams DR. Race, socioeconomic status, and health; the added effects of racism and discrimination. Annals of the New York Academy of Sciences. 1999;896:173–188. [PubMed: 10681897]
  92. Williams DR, Jackson PB. Social sources of racial disparities in health. Health Affairs. 2005;24(2):325–334. [PubMed: 15757915]
  93. Zerhouni E. Testimony to the Committee on the Review and Assessment of the NIH’s Strategic Research Plan and Budget to Reduce and Ultimately Eliminate Health Disparities; Washington, DC. December 9, 2004.2004.
  94. Zerhouni E. U.S. biomedical research; basic, translational, and clinical studies. Journal of the American Medical Association. 2005;294(11):1352–1358. [PubMed: 16174693]
  95. Zerhouni E. Translational and clinical science—time for a new vision. New England Journal of Medicine. 2005;353(15):1621–1623. [PubMed: 16221788]
Copyright © 2006, National Academy of Sciences.
Bookshelf ID: NBK57044
PubReader format: click here to try

Views

  • PubReader
  • Print View
  • Cite this Page
  • PDF version of this title (14M)

Related information

  • PMC
    PubMed Central citations
  • PubMed
    Links to pubmed

Recent Activity

Your browsing activity is empty.

Activity recording is turned off.

Turn recording back on

See more...