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Institute of Medicine (US) Roundtable on Translating Genomic-Based Research for Health. Challenges and Opportunities in Using Residual Newborn Screening Samples for Translational Research: Workshop Summary. Washington (DC): National Academies Press (US); 2010.

Cover of Challenges and Opportunities in Using Residual Newborn Screening Samples for Translational Research

Challenges and Opportunities in Using Residual Newborn Screening Samples for Translational Research: Workshop Summary.

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Abbreviations and Acronyms

CDC

Centers for Disease Control and Prevention

CHI2

Child Health Information Integration

GINA

Genetic Information Nondiscrimination Act

HIPAA

Health Insurance Portability and Accountability Act

IRB

institutional review board

PKU

phenylketonuria

RHIO

regional health information organization

SACHDNC

Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children

SCID

severe combined immunodeficiency

TIES

Trust, Integrity, and Ethics in Science

Copyright © 2010, National Academy of Sciences.
Bookshelf ID: NBK52736

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