Table 6. Resources for stroke survivors and families/caregivers

ACTION
1100 Vermont Avenue NW
Washington, DC 20525
Telephone: (202) 606-4855
Call for number of regional office
A Federal Agency. Sponsors older American volunteer programs. These include:
  • Retired Senior Volunteer Program (RSVP). People age 55 and over are volunteers in schools, libraries, hospitals, and other community settings.
  • Senior Companion Program. Volunteers (any age) provide assistance so that low-income people age 60 and over can remain in their homes.
  • Foster Grandparent Program. Low-income people age 60 and over are volunteers caring for children with special needs.
Administration on Aging
330 Independence Avenue SW
Washington, DC 20201
Telephone: toll-free (800) 677-1116
(Eldercare Locator Number)
Call for list of community services for elders in local area
An Agency of the Department of Health and Human Services. Provides community services for people age 60 and over (and spouses, regardless of age). Services are provided by State and area agencies on aging. Services helpful to stroke survivors and families include homemaker services, Meals on Wheels (meals delivered to the home), congregate dining (group meals in a senior center or other community setting), transportation, senior center activities, and information and referrals.
AHA Stroke Connection
(formerly the Courage Stroke Network)
American Heart Association
7272 Greenville Avenue,
Dallas, TX 75231-4596,
Telephone: toll-free (800) 553-6321
Or, check telephone book for local AHA office
Operates through national office and through local American Heart Association offices. Provides:
  • Educational books, pamphlets, videos, and tapes about stroke for stroke survivors and for families and caregivers.
  • Referral to stroke clubs or other self-help groups in stroke survivor's local area.
  • Help in starting stroke clubs and other self-help groups.
  • Stroke Connection newsletter for stroke survivors and caregivers.
  • Stroke of Luck newsletter for stroke survivors with aphasia and caregivers.
American Dietetic Association/National Center for Nutrition and Dietetics
216 West Jackson Boulevard
Chicago, IL 60606-6995
Telephone: toll-free (800) 366-1655
(Consumer Nutrition Hotline)
Promotes optimal nutrition, health, and well-being for consumers through its various programs and services:
  • Consumers may speak to a registered dietitian for answers to nutrition questions, or obtain a referral to a local registered dietitian.
American Self-Help Clearinghouse,
St. Clares-Riverside Medical Center
Denville, NJ 07834
Telephone: (201) 625-7101
Call for name and number of State of local clearinghouse
National Aphasia Association
P.O. Box 1887
Murray Hill Station
New York, NY 10156-0611
Telephone: toll-free (800) 922-4622
Operates through State and local clearinghouses. Provides information on local self-help groups and assistance in starting a self-help group.
Operates through national office and local affiliates and promotes national awareness. Provides:
  • Educational books and pamphlets about aphasia.
  • Referral to community services.
National Easter Seal Society
230 West Monroe Street, Suite 1800
Chicago, IL 60606
Telephone: (312) 726-6200
Or, check telephone book for local Easter Seal Society
Provides information and services to help people with disabilities, including those from stroke. Operates through national office and local Easter Seal Societies. Provides:
  • Educational books, pamphlets, and audiovisual aids about disabilities.
  • Posters and other publicity to educate the public about people with disabilities.
  • Rehabilitation services including physical, occupational, and speech therapy.
  • Guidance about assistive devices (such as wheelchairs). Vocational evaluation, training, and placement.
  • Recreational and social services.
  • Catalog of publications and products.
National Stroke Association
8480 East Orchard Road, Suite 1000
Englewood, CO 80111-5015
Telephone: (303) 771-1700
Toll-free (800) STROKES (787-6537)
Promotes stroke prevention, treatment, rehabilitation, family support, and research. Provides:
  • Educational books, pamphlets, and audiovisual materials about stroke for stroke survivors, families, and caregivers.
  • Information on local stroke clubs and other self-help groups.
  • Support for stroke research.
  • Training programs about stroke for health care professionals.
  • Be Stroke Smart newsletter for stroke survivors, families/caregivers, and health care professionals.
Rosalynn Carter Institute
Georgia Southwestern College
600 Simmons Street
Americus, GA 31709
Provides information on caregiving. Reading lists, video products, and other caregiver resources are available by writing to the address listed at left.
Stroke Clubs International
805 12th Street
Galveston, TX 77550
Telephone: (409) 762-1022
Run by stroke survivors. Promotes hiring of people with disabilities. Provides lists of stroke clubs in each State.
The Well Spouse Foundation
P.O. Box 801
New York, NY 10023
Telephone: (212) 724-7209
Toll-free (800) 838-0879
Provides support for the husbands, wives, and partners of people who are chronically ill or disabled. Provides bimonthly newsletter, regional support groups, pen pal system, and an advocacy program.

From: 16, Post-Stroke Rehabilitation: Assessment, Referral, and Patient Management

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