TABLE 3-2 Selecteda Nationwide Sources of Free Patient Information on Cancer and Cancer-Related Services

Program Information Available On How to Access
American Cancer Society (ACS) Cancer Reference Information Specific cancers, treatment, and psychosocial services www​
1-800-ACS-2345 (toll free)
American Institute of Cancer Research Nutrition, diet, and exercise to combat cancer www​
1-800-843-8114 (toll free)
Its online Nutrition Hotline allows survivors to e-mail a personal nutrition and diet question to a registered dietician
Asian and Pacific Islander National Cancer Survivors Network Information on where to obtain psychosocial services, and languages spoken by sources of the services www​
Association of Cancer Online Resources Types of cancer, treatment options, clinical trials, and locating support groups www​
Bladder Cancer Advocacy Network Bladder cancer, other organizations with information on bladder cancer and that offer support services, finding clinical trials www​
1-888-901-BCAN (toll free)
Bloch Cancer Foundation Sources of information about cancer, treatments, and fighting cancer www​
1-800-433-0464 (toll free)
Brain Tumor Society General overview of brain tumors (symptoms, diagnosis, pathology, subtypes of brain tumors) and information on treatment options; complementary and alternative medicine; and finding brain tumor centers, financial and insurance resources, and support groups www​
1-800-770-8287 (toll free)
C3: Colorectal Cancer Coalition Diagnosis, treatment options, dealing with side effects, and support services and resources www​
Cancer Research and Prevention Foundation General overview of various types of cancer, treatment options, and emerging therapies www​
1-800-227-2732 (toll free)
CancerCare Diagnoses, treatment types, and multiple psychosocial support services www​
1-800-813-HOPE (toll free)
Candlelighters Childhood Cancer Foundation Treatments, finding support groups, financial assistance, cancer-related news, and where to find treatment clinics www​
1-800-366-2223 (toll free)
Colon Cancer Alliance Colorectal rectal cancer, treatment, clinical trials, finding support services www​
1-877-422-2030 (toll free)
Colorectal Cancer Network Colorectal cancer, treatment options, clinical trials, and finding treatment centers and support www​
CureSearch Information on childhood cancers, treatments, side effects, hospitals, and clinical trials www​
1-800-458-6223 (toll free)
Provides a directory of national and local support services
Facing Our Risk for Cancer Empowerment (Breast Cancer) Telephone hotline matching patients to peer counselors and information about breast cancer www​
1-866-824-7475 (toll free)
fertileHope Reproductive aspects of cancer and cancer treatment, parenthood options for persons at risk for infertility, clinical trials www​
1-888-994-4673 (toll free)
Finding doctors/clinics specializing in fertility treatments
Locating a speech therapist or pathologist by state
International Association of Laryngectomees Locating support services www​
Directory of laryngectomee suppliers
International Myeloma Foundation Myeloma, treatment options, managing side effects of treatment and myeloma symptoms, finding clinical trials, locating support groups www​
Telephone hotline: Toll free at 1-800-452-CURE or 1-800-452-2873, 9:00 am–4:00 pm PST
Contact via email: gro.amoleym@FMIehT
Kidney Cancer Association Kidney cancer, types of surgical treatment, therapies for advanced kidney cancer, finding clinical trials, finding support groups, other cancer organizations, information on patient self-empowerment www​.akca.uswww​
Nurse hotline: 1-866-400-5151 (toll free), Monday–Friday, 9:00 am–4:00 pm PST
Message board containing information on nutrition, diet, health insurance, financial resources
Lance Armstrong Foundation Different types of cancer and their treatments; physical, practical, and emotional concerns; clinical trials; and resource directories www​
One-on-one help: 1-866-235-7205 (toll free)
The Leukemia and Lymphoma Society Information on leukemia, lymphoma, and other blood cancers; finding support groups; developments in treatments; decision-support tools; and clinical trial updates Online chat with information specialist: www​; Monday–Friday, 10:00 am–5:00 pm ET
Telephone inquiries (Information Resource Center [IRC]): 1-800-955-4572, Monday–Friday, 9:00 am–6:00 pm EST. IRC information specialists are social workers, nurses, and health educators
Look Good …Feel BetterProgram Appearance-related/cosmetic tips; e.g., skin care and make-up; hair care; hair loss; wig choice, styling, and care www​
1-800-395-LOOK phone access 24 hours/day, 7 days/week, in English, Spanish, and other languages (toll free)
Locating a Look Good Feel Better Program in patients’ areas
Lung Cancer Alliance Lung cancer, treatment options, clinical trials, finding support groups, other resources www​
Hotline: 1-800-298-2436 (toll free)
The Lustgarten Foundation for Pancreatic Cancer Research Pancreatic cancer and treatment www​
Patient And Caregiver Education (PACE) program assists individuals to access information and support resources they need to make informed decisions 1-866-789-1000 (toll free)
PACE is staffed by a full-time, licensed social worker, who addresses patient inquiries, conducts searches for individualized information and clinical trials, and provides referrals as needed
Lymphoma Foundation of America Finding lymphoma specialists www​
How to get a second opinion 1-800-385-1060 (toll free)
Lymphoma Research Foundation Different types of lymphoma, treatment options, clinical trials, and finding peer support www​
Helpline: 1-800-500-9976 (toll free), gro.amohpmyl@enilpleh
Melanoma Research Foundation Melanoma, tests, and questions to ask patient’s doctor www​
1-800-MRF-1290 (toll free)
List of melanoma centers by region
Multiple Myeloma Research Foundation Information on symptoms, diagnosis, prognosis, and stages; finding support groups; treatment options; matching clinical trials www​
Information on clinical trials: Speak with a clinical trial specialist at 1-800-506-9044. Available Monday–Friday, 8:30 am–6:00 pm ET
Locating clinical trials online: www​​/clinical_trials/4.09.php
National Cancer Institute (NCI) Different types of cancers; treatments; strategies for coping with fatigue, pain, emotional concerns; and clinical trials www​
Telephone inquiries: 1-800-4-CANCER (1-800-422-6237) TTY: 1-800-332-8615 Monday–Friday, 9:00 am–4:30 pm local time (toll free)
Information specialists are available to answer a range of questions in “real time” about cancer including most recent treatment advances and can take as much time as needed for thorough and personalized responses
Online web inquiries via: https://cissecure​.nci​
Email inquiries via: vog.hin.liam@ffatsvogrecnac
National Coalition for Cancer Survivorship Online publications on types of health insurance and coverage; employment rights; advice on communicating with your doctor www​
To order hard copies of publications, call toll-free at 1-877-NCCS-YES or 1-877-622-7937
Information on palliative care and symptom management, diet/nutrition, clinical trials, importance of exercise
Finding cancer centers; support groups; other cancer organizations
National Lung Cancer Partnership General information about lung cancer and resources to help navigate the challenges posed by lung cancer, including information on clinical trials and support services www​
National Lymphedema Network Lymphedema, causes, symptoms, and treatment www​
1-800-541-3259 (toll free)
Treatment centers, suppliers, and manual lymphatic drainage therapists
Finding emotional support groups, penpals, and netpals
National Ovarian Cancer Coalition (NOCC) Ovarian cancer and clinical trials www​
Finding NOCC state chapters for support and educational programs 1-888-OVARIAN (toll free)
Database for finding gynecologic oncologists
National Prostate Cancer Coalition General facts and information about prostate cancer; screening; risk factors; staging; side effects; information on diet/nutrition; treatment options www​
Needy Meds Programs that help with the cost of medicine and other health care expenses www​
North American Brain Tumor Coalition Brain tumor facts, public policy issues affecting brain tumor health care www​
The Oral Cancer Foundation Oral cancer, treatment, rehabilitation, dental issues, and emotional issues www​
Ovarian Cancer National Alliance Ovarian cancer, symptoms, stages, diagnosis, approaches to treatment, and finding a clinical trial www​.ovariancancer.org1-866-399-6262 (toll free)gro.recnacnairavo@anco
Pancreatic Cancer Action Network (PanCAN) Types of pancreatic cancer, treatment options, side effects of treatment, diet and nutrition, pancreatic cancer specialists and cancer centers, clinical trials, location of educational symposiums in the United States about pancreatic cancer www​
1-877-272-6226 (toll free)
Email gro.nacnap@slap to connect with a PALS Associate Monday–Friday, 8:00 am–5:00 pm PST
Offers Patient and Liaison Services (PALS), a comprehensive, call-in information program for patients, families, and health professionals
People Living With Cancer (sponsored by the American Society of Clinical Oncology (ASCO)) Cancer, types of cancer, diagnosis, finding an oncologist, treatment, coping, managing side effects, survivorship, clinical trials www​
1-888-651-3038 (toll free)
Finding emotional support services, financial assistance, treatment
Planet Cancer (targeted to young adults with cancer) Practical advice on dealing with side effects and coping with cancer, news/articles on cancer research www​
Prostate Cancer Foundation Prostate cancer, treatment options, side effects, nutrition, and other lifestyle practices to improve health www​
1-800-757-2873 (toll free)
Sarcoma Foundation of America Types of sarcomas, symptoms, diagnosis; treatment options; links to other sarcoma organizations; information on clinical trials www​
Shop Well With You Customized clothing tips arranged by cancer-related treatments and side-effects www​
Directory of cancer-specific products such as swimsuits and head coverings and where items can be located
Guidance on how to use clothing and accessories to maintain a positive body-image during and after treatment
Articles and books on body-image, clothing, cancer, and wellness
The Skin Cancer Foundation Various types of skin cancer, treatment, and health care after treatment www​
1-800-754-6490 (toll free)
Finding a skin cancer physician gro.recnacniks@ofni
Support for People with Oral and Head and Neck Cancer Oral, head, and neck cancers; and treatments, clinical trials, rehabilitation and resources to improve or manage symptoms of cancer or its treatment www​
1-800-377-0928 (toll free)
Developments in treating head and neck cancer
Susan G. Komen for the Cure Breast cancer, treatment, care after treatment, support services, and research www​
1-800-462-9273 (toll free)
The Testicular Cancer Resource Center Testicular cancer, treatment, clinical follow-up after treatment, coping, experts in testicular cancer, and life after treatment http://tcrc​
Email questions: ude.tim.mula@knabguod
Thyroid Cancer Survivors’ Association, Inc. Thyroid cancer, treatment, nutrition and diet, finding a specialist and support groups www​
1-877-588-7904 (toll free)
US Too (Prostate Cancer) Prostate cancer, treatment options, post-treatment issues, clinical trials www​
Hotline: 1-800-808-7866 (toll free)
Women’s Cancer Network Various types of cancers, treatment, symptom management, care issues affecting women with cancer, clinical trials, and finding an oncologist www​
1-800-444-4441 (toll free)
Y-ME National Breast Cancer Organization, Inc. Breast cancer, treatment, side effects, clinical trials, coping, and quality of life issues Brochures by mail (English and Spanish)
24-hour, toll-free, national hotline staffed by trained survivors: 1-800-221-2141 (English) 1-800-986-9505 (Spanish) Interpreters available for 150 languages
Free, monthly, 1-hour teleconferences on breast cancer issues with presentation by a medical professional followed by a question and answer session

The committee recognizes that there are many more organizations that provide free information services to cancer patients, and regrets the inability to acknowledge all of them in this report. The organizations included here are intended to illustrate the breadth of information services available at no cost to patients and should not be viewed as a complete list.

From: 3, Psychosocial Health Services

Cover of Cancer Care for the Whole Patient
Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs.
Institute of Medicine (US) Committee on Psychosocial Services to Cancer Patients/Families in a Community Setting; Adler NE, Page AEK, editors.
Washington (DC): National Academies Press (US); 2008.
Copyright © 2008, National Academy of Sciences.

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