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Institute of Medicine (US). Sharing Clinical Research Data: Workshop Summary. Washington (DC): National Academies Press (US); 2013 Mar 29.
Sharing Clinical Research Data: Workshop Summary.
Show details- WYLIE BURKE (Co-Chair), University of Washington, Seattle
- SHARON TERRY (Co-Chair), Genetic Alliance, Washington, DC
- NAOMI ARONSON, Blue Cross and Blue Shield Association, Chicago, IL
- EUAN ANGUS ASHLEY, Stanford University School of Medicine, Palo Alto, CA
- PAUL R. BILLINGS, Life Technologies, Carlsbad, CA
- BRUCE BLUMBERG, The Permanente Medical Group, Oakland, CA
- DENISE E. BONDS, National Heart, Lung, and Blood Institute, Bethesda, MD
- PHILIP J. BROOKS, National Center for Advancing Translational Research, Rockville, MD
- C. THOMAS CASKEY, Baylor College of Medicine, Houston, TX
- SARA COPELAND, Health Resources and Services Administration, Rockville, MD
- MICHAEL J. DOUGHERTY, American Society of Human Genetics, Bethesda, MD
- VICTOR DZAU, Duke University, Durham, NC
- W. GREGORY FEERO, Journal of the American Medical Association, Chicago, IL
- ANDREW N. FREEDMAN, National Cancer Institute, Rockville, MD
- GEOFFREY GINSBURG, Duke University, Durham, NC
- RICHARD J. HODES, National Institute on Aging, Bethesda, MD
- SHARON KARDIA, University of Michigan School of Public Health, Ann Arbor
- MOHAMED KHAN, BC Cancer Agency, Vancouver, British Columbia, Canada
- MUIN KHOURY, Centers for Disease Control and Prevention, Atlanta, GA
- THOMAS LEHNER, National Institute of Mental Health, Bethesda, MD
- DEBRA LEONARD, Weill Cornell Medical Center of Cornell University, New York, NY
- ELIZABETH MANSFIELD, U.S. Food and Drug Administration, Silver Spring, MD
- KELLY McVEARRY, Northrop Grumman Information Systems, Rockville, MD
- GARRY NEIL, Johnson & Johnson, New Brunswick, NJ
- ROBERT L. NUSSBAUM, University of California, San Francisco, School of Medicine
- MICHELLE A. PENNY, Eli Lilly and Company, Indianapolis, IN
- AIDAN POWER, Pfizer Inc., Groton, CT
- VICTORIA M. PRATT, Quest Diagnostics Nichols Institute, Chantilly, VA
- RONALD PRZYGODZKI, Department of Veterans Affairs, Washington, DC
- ALLEN D. ROSES, Cabernet, Shiraz and Zinfandel Pharmaceuticals; Duke University, Durham, NC
- KEVIN A. SCHULMAN, Duke University School of Medicine, Durham, NC
- JOAN A. SCOTT, National Coalition for Health Professional Education in Genetics, Lutherville, MD
- DAVID VEENSTRA, University of Washington, Seattle
- MICHAEL S. WATSON, American College of Medical Genetics and Genomics, Bethesda, MD
- DANIEL WATTENDORF, DARPA/Defense Sciences Office, Arlington, VA
- CATHERINE A. WICKLUND, Northwestern University, Chicago, IL
IOM Staff
- ADAM C. BERGER, Director, Roundtable on Translating Genomic-Based Research for Health
- SEAN P. DAVID, James C. Puffer, M.D./American Board of Family Medicine Fellow
- TONIA E. DICKERSON, Senior Program Assistant
- ANDREW M. POPE, Director, Board on Health Sciences Policy
Footnotes
- 1
Institute of Medicine forums and roundtables do not issue, review, or approve individual documents. The responsibility for the published workshop summary rests with the workshop rapporteurs and the institution.
- ROUNDTABLE ON TRANSLATING GENOMIC-BASED RESEARCH FOR HEALTH - Sharing Clinical R...ROUNDTABLE ON TRANSLATING GENOMIC-BASED RESEARCH FOR HEALTH - Sharing Clinical Research Data
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